Dateline NBC is airing a special report on American teenagers who are suffering from a rare genetic disorder, Erythropoietic Protoporphyria (EPP). They endure terrible pain when exposed to sunlight. There are a number of ways to cope with the disorder including wearing UV resistant clothing. Summer is obviously the most difficult season for kids with EPP. Luckily, there’s Camp Discovery.
[Allergic To Sunlight? How Teens Cope With EPP]
Camp Discovery is a safe, fun summer haven for young people with EPP. Not only do campers get to meet and bond with other kids who have similar challenges, and have fun fishing and hiking, but they also receive support and advice from the camp counselors who are dermatologists and nurses. And it’s free! The camp is funded by the American Academy of Dermatology. There are six locations this summer in Washington, Texas, Pennsylvania, Connecticut, and two in Minnesota. Each child must be referred by a dermatologist. Visit the AAD website for more information.
